About Dementia Mate Wareware
More information about dementia mate wareware is available on Manatū Hauora Ministry of Health website here and information will also be published shortly on a new public health website.
About the Dementia Mate Wareware Initiative
The Dementia Mate Wareware Initiative focuses on supporting the implementation of the Dementia Action Plan, specifically addressing the objective to support people living with dementia mate wareware, their whānau, and care partners/supporters to live their best possible lives.
Implementing the Dementia Mate Wareware Action Plan is a commitment under Te Pae Tata Interim New Zealand Health Plan 2022.
Budget 2022 allocated $12 million over four years for the Dementia Mate Wareware Initiative. Seven new services have been commissioned under this initiative, selected with a focus on the following priority populations - Māori, Pacific, people living in rural areas and people with younger onset dementia mate wareware.
The new services include:
- Post diagnostic supports for people with dementia mate wareware, their whānau and carers
Navigator roles to coordinate and enable people to access the support they need
Respite care to enable carers to take a break from their caring responsibilities.
The following is a summary of the providers who submitted successful applications to deliver dementia services for this initiative, including post-diagnostic supports, navigation services and respite care services over the next four years.
Post-diagnostic supports and navigation services
Manaaki Ora Trust
Manaaki Ora will deliver a service called Hei Tau Te Mauri, which is an extension of its Tiaki whānau model of care that addresses the health and wellbeing needs of whānau. It incorporates a kaupapa Māori, holistic approach to hauora.
The service will be delivered by 2.0 FTE kaitiaki who will facilitate initial needs assessments, kainga visits, ongoing support and care, group sessions and referral pathways, all while incorporating kaupapa Māori principles and values.
Hei Tau Te Mauri will be a predominantly mobile service, designed to provide support to tangata mate wareware in their homes, or any other location where they feel comfortable.
Services will be delivered in the following areas across the following Rotorua districts: Ngongotahā, Mourea, Hamurana, Rotoma, Rotoiti, Mamaku, Murupara and Reporoa.
Manaaki Ora Trust was formed in 2012 from the integration of two established and successful health groups: Tipu Ora and Te Utuhina Manaakitanga.
Manaaki Ora Trust delivers a wide range of primary health, social, and education services for people living in the Rotorua region, utilising Te Arawa tikanga and kaupapa Māori models of health practice.
They focus on the health and wellbeing needs of tamariki and whānau, pakeke, kaumātua and rangatahi, providing an integrated approach to service delivery for all ages. This means clients can receive a continuum of care according to their needs.
Dementia Canterbury in collaboration with Purapura Whetu Trust
Dementia Canterbury will deliver the co-designed mate wareware Tupaia (Navigators) service in partnership with Purapura Whetu, it includes a wide range of programmes for whānau affected by mate wareware.
The service aims to enable access to diagnosis and support services and kaupapa Māori programmes, which are specifically designed to support people with mate wareware and whānau to live well in the community.
Services will include: brain health education; cultural support to access a diagnosis; information and brokerage to access needs assessment and service coordination; ongoing connection to primary health care support and advocacy when needed; education programmes designed to support living well; social and activity programmes designed to encourage positive and familiar history, connections, activities and experiences; delivery of Cognitive Stimulation Therapy; and, access to clinical expertise from a Dementia Advisor.
The services may be delivered in the person’s whare, on a marae, at Purapura Whetu, at Dementia Canterbury, in the community or in other familiar environments.
Dementia Canterbury is a long-standing not-for-profit organisation, supported by the people and hapori of Canterbury and the West Coast.
Dementia Canterbury’s catchment area covers all of Canterbury including the Ashburton region, North Canterbury, Kaikoura, and West Coast.
Dementia Canterbury exists to support people and their whānau to continue to live fulfilling lives following a dementia mate wareware diagnosis.
The organisation provides free, community-based education, activities, and specialised services across the Waitaha and Te Tai Poutini regions. The organisation also raises awareness about dementia mate wareware, encourages local people to seek diagnosis and breaks down barriers and stigma associated with the neurological condition.
Te Puna Ora o Mataatua Charitable Trust (TPOOM)
TPOOM will deliver the Rehua Ārahi Mate Wareware service in partnership with local hapū and marae, focussing on supporting, educating, and empowering whānau and their loved ones who have onset or early stages of dementia mate wareware.
2 FTE Kaiārahi Ārahi Mate Wareware will support people living with dementia mate wareware and their whānau to: co-design care plans for whānau, co-ordinate services and resources, support access to registered nurses for assessments, specialist care, home care and advocacy, co-design information campaign for whānau and the public and help people get access to the funded services Rehua Ārahi Mate Wareware provides.
This service will be delivered across the following areas: Whakatāne, Ōhope, Coastlands, Poroporo, Kawerau, Matatā, Edgecumbe, Awakeri, Te Teko, Murupura, Ruatahuna, Waiohau, Galatea, Ōpōtiki, Kutarere, Ruatāhuna, Waimana, Taneatua, Ruatoki, Tauranga and the East Coast.
TPOOM was established in 1991 by iwi across the Mataatua rohe. They are a non-profit charitable organisation based in Whakatāne that covers the Mataatua/Eastern Bay of Plenty region.
TPOOM provide a range of integrated health, medical, social and employment services. They deliver a whānau ora model of care that provides an all-inclusive delivery of services through multiple forms of engagement.
Aotearoa Tongan Health Workers Association Incorporated (‘Ākiheuho)
The dementia service will be known as the Pacific Dementia Māngalo Service.
Ākiheuho will deliver fāmili focused post-diagnostic supports, and navigation services underpinned by the Ūloa Tongan cultural framework. Services will be an ethnic specific, fāmili centred model that emphasises the role of the kāinga and Tongan values in care practice (ie, love, care, kindness, mutual respect, sharing, cooperating and fulfilment of mutual obligations, humility, generosity, loyalty, and commitment).
This initiative will ensure services are continuous and flexible so that it can adapt to the changing needs of the person with Māngalo (Tongan concept of Dementia) and their fāmili.
Two full-time experienced Māngalo Navigators who speak Tongan or other Pacific languages will be employed to provide non-clinical navigator services in a non-intrusive approach in homes or anywhere that is comfortable for the person with Māngalo and their fāmili.
Tongan clinical specialists will deliver workshops and activities each month. Other specialists will be brought in as needed. The aim of the workshops and activities is to empower the person living with Māngalo, their carers and fāmili.
Clinicians will host awareness programmes to improve health literacy, symptom awarenessand diagnosis. The awareness programme will include radio and community presentations on how to be more aware of the signs of Māngalo and what can be done to slow down disease progression.
The service will also deliver workshops to build capacity to provide care for people with dementia and long-term strategies to family carers and caregivers.
Aotearoa Tongan Health Workers’ Association Incorporated (‘Ākiheuho) was established in 2005 and is known as ‘Ākiheuho, within the community. They were formed in response to the rising unmet health needs within the Tongan community.
Their vision is to have a healthy and prosperous Tongan and Pacific community in New Zealand and abroad.
Te Hau Ora o Ngāpuhi
Te Hau Ora o Ngāpuhi will deliver post-diagnostic supports and navigation services underpinned by four principles of being whānau centred, sustainable, innovative, and culturally safe.
The supports and services are designed for Māori by Māori and in partnership with local partners across the Te Tai Tokerau rohe.
A team has been created that offers tāngata mate wareware, their whānau and carers the following supports and services. Te Hau Ora O Ngāpuhi will:
- Establish and coordinate a range of appropriate services for tāngata mate wareware, their whānau and carers in non-traditional health care settings including clinical support, appropriate screening, diagnostic assessments, and education in the community
- Provide navigation services to coordinate and support access to services that support tāngata mate wareware, their whānau and carers to understand health literacy of available best management options for mate wareware
- Ensure appropriate educational resources are available for tāngata mate wareware, their whānau and carers
- Employ a service lead, who will work with a team of kaimahi, working conjointly to support tāngata mate wareware, their whānau and carers to identify their needs and to access relevant health focussed activities
- Build and maintain relationships with groups and providers across the community to ensure tāngata mate wareware, their whānau and carers receive the support and resources they need and achieve whānau ora outcomes and holistic wellbeing
- Work with whānau to develop their capacity to maintain healthy lifestyles, and support behaviour change where appropriate to improve their health and wellbeing
- Provide access to cognitive stimulation therapy and other evidence-based interventions to maximise function for tāngata mate wareware
- Work collaboratively with specialist dementia and alzheimers NGOs across the community/region to promote best practices, collaboration, integrated care, and improved health outcomes for tāngata mate wareware, their whānau and carers
- Promote Dementia Awareness Month across the community and support with local activities
- Provide dementia mate wareware information that is freely available, in accessible formats and available in Te Reo Māori
- Create a digital wallet for tāngata mate wareware, their whānau and carers so they are aware of local services and programmes.
Te Hau Ora o Ngāpuhi was established in 2015 and leads the health strategy for Ngāpuhi whānau, hapū and hāpori living within Te Whare O Ngāpuhi.
Located in the main centre of Kaikohe, Te Hau Ora o Ngāpuhi delivers programmes that contribute to achieving optimal outcomes for whānau.
Te Hau Ora o Ngāpuhi serve whānau within the Te Whare Tapu o Ngāpuhi iwi boundaries, the middle Far North from South Hokianga through to Mangakāhia, across the Bay of Islands and down to the South-Western Whangārei region.
The strategic direction for Te Hau Ora o Ngāpuhi is aligned with the Rūnanga’s vision, mission statement, Whanāu Ora Strategy, and the desire for safe and healthy communities where whānau thrive.
Te Hau Ora o Ngāpuhi vision is “Kia tu tika te whare tapu o Ngapuhi” “That the sacred house of Ngapuhi will stand strong”.
Respite care services
Presbyterian Support Upper South Island (PSUSI)
The Presbyterian Support Upper South Island HomeShare Day Programme will be delivered through a collaboration of 12 agencies across Te Waipounamu. The collaboration across Te Waipounamu will develop a dementia mate wareware HomeShare day activity programme, providing respite care for persons with dementia mate wareware.
Services will be delivered across 17 rural and regional localities across Te Waipounamu. These include Otago, South Canterbury, Canterbury, Marlborough, Nelson/Tasman, and West Coast.
The respite services in 17 locations across Te Waipounamu will deliver fun activities around service users’ interests, provide opportunities to socialise and contribute to reducing stress for whanau/caregivers.
Respite care will be delivered in private homes or community venues for a maximum of four people with dementia per day. Therefore, each location in the trial can focus on the needs of differing groups of people. Across several locations, the needs of Māori, young onset (under 65 years) or those who live rurally who have dementia mate wareware, will be met.
A typical day in the dementia mate wareware HomeShare programme will involve:
- The delivery of appropriate recreational, diversional, and social activities, according to the interests and priorities of the participants
- Fun and socialisation
- A shared meal
- Assistance with transport to and from the dementia mate wareware HomeShare venue will be provided if required.
Presbyterian support has been providing social services in the Upper South Island for over 100 years.
Their vision is for a compassionate and inclusive society and their mission is to support children, young people, whānau/families, and older people to be safe, strong and connected.
Presbyterian support provides a range of services for tamariki, whānau, young people and kaumātua to ensure wrap around supports are available for all ages.
Dementia Hawke’s Bay in collaboration with Kahungunu Executive ki te Wairoa Charitable Trust
Dementia Hawke’s Bay Charitable Trust in collaboration with Kahungunu Executive ki te Wairoa Charitable Trust will provide respite care services via the Kaupapa Māori Active Day Programme based in the Wairoa community.
The Kaupapa Māori Active Day Programme will deliver cognitive stimulation, physical activity, and socialisation to promote brain health. A typical day will go from 9am to 3pm.
The Kaupapa Māori Active Day Programme will be delivered in tandem with the Ageing Well Programme ‘Te Rangi Atua’ for kaumātua.
Dementia Hawkes Bay is a charitable trust that focuses on the development and delivery of quality services for people with a diagnosis of mate wareware and their whānau in the Hawke’s Bay region.
They offer unique services that support people to function in their own homes and within the community from the point of diagnosis and throughout their dementia journey.
Kahungunu Executive ki te Wairoa Charitable Trust is the only Māori Health Provider in Wairoa, delivering a range of health, mental health, social and housing services to the Wairoa community and the surrounding rural areas.
Their vision is for the Wairoa whānau to be healthy and well and their mission is to help whānau achieve their goals and aspirations.
For more information: see www.kahu-exec.co.nz/, www.dementiahb.org.nz/ or contact Sarah Paku General Manager, Kahungunu Executive ki te Wairoa Charitable Trust on email email@example.com or Tracey Lanigan, CEO of Dementia Hawke’s Bay on email firstname.lastname@example.org
Improving Dementia Mate Wareware Services in Aotearoa New Zealand Action Plan
Implementing the Dementia Mate Wareware Action Plan is a commitment under Te Pae Tata Interim New Zealand Health Plan 2022.
With no treatment or cure on the horizon, dementia mate wareware is one of the 21st century’s greatest global challenges for health and social care. It represents a major challenge for Aotearoa New Zealand, creating significant human, social, economic, health, workforce and economic costs. People living with dementia mate wareware are amongst the most vulnerable in Aotearoa New Zealand and services are not currently capable of meeting their needs.
The Action Plan was developed on behalf of and with input and support from the wider sector by a small group of dementia mate wareware NGOs, including the New Zealand Dementia Foundation, Dementia New Zealand and Alzheimers New Zealand, the Mate Wareware Advisory Rōpū, clinicians, academics, and providers to drive the changes needed to address this challenge and improve the health, independence, and quality of life of people living with dementia mate wareware in a sustainable way. The changes build on current and potential services and supports.
The Action Plan was first presented to the Government in May 2020 and updated in September 2021.
Its goal is to improve the wellbeing of people living with dementia mate wareware while decreasing the impact of dementia mate wareware on them, as well as on Aotearoa New Zealand, family and whānau, communities, the health system, and the economy.